Velindre NHS Trust has won a coveted Nursing Times Award.
The results of the Nursing Times Awards 2016 were revealed on 26 October at the prestigious Grosvenor House, Park Lane, where the nursing and healthcare profession came together for a night of recognition and celebration of the sector’s achievements.
Velindre NHS Trust has won in the Cancer Nursing Category and was praised by the expert judging panel for an amazing inspirational project devoting time and energy over many years. A simple idea with such a positive impact on so many families.
Inspired by experiences of families, cancer nurse Michele Pengelly was concerned about the paucity of resources helping newly diagnosed cancer patients talk to their children about cancer and the impact on the family. Resources were limited, mostly using heteronormative images, questionable for the diversity of modern-day families (single parents, same sex parents). In a collaborative partnership with Equality Manger Ceri Harris, the idea to write a series of books, fully diverse, accessible and fit for purpose including British Sign Language and audio developed. Following consultation with patients, children and professionals the first “Caring for my family with Cancer” book was successfully launched in 2015.
Michele wrote the first six books and Ceri project managed the development of the series of books. A stakeholder group of equality based organizations was established, so the stories of diversity were representative and images appropriate. The stakeholder group was instrumental in ensuring that the finished product met the needs of the community.
In 2015/16 during the pilot period of the first book, 100 copies were given to families.
The book has now been revised, and six versions are available with the series continuing to grow as needs are identified. The BSL version, audio and new design will be launched with the stakeholder group in November 2016. All monies for the project have been generously raised through Velindre Fundraising and this includes 5000 cuddly toy lions to accompany the books. This means that each family receives a free book and a free adult and baby lion.
Some of the wonderful families who were given a copy of the book and the cuddly lion toys, told us:
“Our daughter is only little but the book really helped her to understand the difference that Daddy has cancer and not just a “baddy” leg. It helped us as parents to find the right words to explain it to her and I would recommend this book to everyone.”
“The book is such a fantastic idea. It is so clear, colourful and easy to follow. Our boys also loved the cuddly lions. It gave us confidence to talk to them about this. Well done to all involved.”